this post was submitted on 04 Oct 2026
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You're not perhaps talking about keratoconus?
Lol indeed, I'm surprised someone else knows about it.
It's a terrible fucking disability but there's like no research into it and insurance thinks they know better than ophtomologists
My brother has it. I'm German, and he got an experimental treatment called crosslinking some years ago. They stabilize the cornea using a laser, and since then, he doesn't need contact lenses anymore, but glasses suffice. Nowadays, it's apparently proven enough that even the public health insurance pays for it. Now, by the price of the contact lenses you mentioned, I presume you're American, and it might be incredibly expensive, but you could still do a bit of research about it.
I had cxl a few years back, his case sounds a lot more manageable. Cxl doesn't typically improve vision, it just prevents it from getting worse.
I'm in Canada, but it was also $$$ when I was in the US. For some fucking reason it's specifically excluded from the assistive devices coverage here. My ophto has been fighting them for ages
CXL stands for cornea cross-linking, so you have done it already. Then nevermind what I said. Good luck with your struggles in the future!
Is that the one where, if you don't wear contact lenses, your eyeballs might literally explode?
Nope, your cornea might fall out. At least I haven't heard of exploding eyeballs