this post was submitted on 28 Feb 2025
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 9 months ago
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What went well for you? Today or this week. No matter how small, let's celebrate the good things in our lives!

I'll try to post this regularly.

My best friend phoned me this week to catch up. It was nice to see him and his family again, although it still was exhausting.

Plus, my family made some culinary experiments that all paid off. Great food makes for a little bit of happiness.

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[–] [email protected] 6 points 1 month ago

Had an appointment with the diabetic consultant in the week, and they've referred me to have a constant monitor fitted. I thought my blood sugars were doing ok, but he told me that the levels I'm getting in the mornings are what would be classed as high for a healthy person.

It sounds bad, that my diabetes isn't as controlled as I thought, but he said that the high sugar levels could explain my increased ADHD symptoms. If that's the case, this should help me get them under control, and bring my forgetfulness and brain fog back under control too. I'll take that as a potential win for now :)

[–] [email protected] 4 points 1 month ago (1 children)

I trialled a new power chair, and in a lot of ways it feels more freeing. It can go 8km/h rather than just 6km/h, it seems more comfy, it's mid-wheel drive.

[–] [email protected] 4 points 1 month ago

Yes! Go, Speed Princess!