this post was submitted on 08 Jul 2024
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Autism
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I'm no doctor but I've been living with this my entire life. I'm only realizing recently that is not normal to be in constant pain and so chronically exhausted that even my libido has almost completely died. i am now seeing a cardiologist and had to wear a heart monitor for 2 weeks and get an echocardiogram, because i was nearly passing out from very light work in the heat. my doctor suspects POTS and i know that I'm hypermobile, but having trouble qualifying for testing for Ehler Danlos. these conditions commonly present together and pretty much take you out of commission. definitely see a doctor.
doctors will probably give you the run-around at first and say it's depression. well, let me tell you from extensively researching my symptoms, that depression can develop from these symptoms, it's not always the cause. i am depressed and anxious because I'm constantly in a state of pain and exhaustion and nothing i do is ever enough to keep up. it's a horrible way to live and I'm hoping for answers so i can at least have guidance from doctors on minimizing these things.
EDIT: i now see what community this post is in. POTS and EDS are higher in the autistic community. read a bit into those conditions and see if you relate.