overview for MaryReads

CAUGHT in c/[email protected]

[–] [email protected] 12 points 1 week ago (3 children)

... why not both?

Finally got my first Nicole message, happy to be included in c/[email protected]

[–] [email protected] 8 points 1 week ago

Hey, this might be a harassment campaign. Pls delete

Help with Diagnosis? in c/[email protected]

[–] [email protected] 3 points 1 week ago

That also sounds rough. Hugs. I will look into Ebstein Barr, thanks for the heads up. Hope make a good memory today!

Help with Diagnosis? in c/[email protected]

[–] [email protected] 2 points 1 week ago

DAO enzyme deficiency is too slow. I I have pain reactions instantly. Like I have reactions just from putting stuff in my mouth, if it has a lot of Histamin, lol

Antihistaminika DO help, massive improvement once I figured it out.

Thanks for your answer!

Help with Diagnosis? in c/[email protected]

[–] [email protected] 2 points 1 week ago

I think so too, but this full body pain reaction just a few seconds after I put any trigger in my mouth is just hella strange, I didn't see it described anywhere -.-

Don't think it's MS, my ex has MS, so we would have prob figured that out.

Rheumatoid Arthritis doesn't fit either, as the Pain is mainly located in Muscles ect, though joints as well.

... Yeah my best explanation is still somewhere in the cluster of me/cfs-fibro-mcas Though it just seems like a combination of the last two which is weird.

Thank you for your extensive answer, I appreciate it a lot!

9

Help with Diagnosis? (lemmy.cafe)

submitted 1 week ago by [email protected] to c/[email protected]

7 comments fedilink

So, I know that getting info from here isnt the same as an official diagnosis, but doctors have been absolutely useless. I am still looking for a diagnosis that fits but it don't really find anything. I would welcome any person with ideas where to look for more info.

15 months ago, I had an infection, though I tested negative for Corona several times.

Afterwards I got flu like symptoms and didn't get better until I crashed a few weeks later.

After Several Months with strong Fatigue, Nausea, ME/CFS like Symptoms, where I barely could leave the house I was doing okay ish. Then Symptoms got worse again and I developed ChronicPain in in Muscles and Joints all over my body. It somehow seemed connected to eating but it took a long time to realize that it is connected to Histamin.

So thats where I'm at: I thought it might be mcas, but my "only" symptom after eating anything with histamin is pain and fatigue. It doesn't really fit the "allergic reaction" I see described as typically for mcas. My body also reacts super fast on anything, with histamin. I don't even have to swallow sometimes to feel the pain train starting. Histamin blocker help a lot, but any Histamin-Food is off the table.

Then I thought It might be fibromyalgia, because the pain seems really similar, but again it is connected to Histamin-Food, and doesn't fit anything I read online.

I would appreciate some comments from mcas/fibromyalgia people a lot, otherwise I'm at a loss what it could be -.-

A yes, one more thing: I am now completely unable to take any stimulants because of nausea. So, Coffey, Tee and ADHD meds are off the table. :/

ich😎iel in c/[email protected]