A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
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I made a combined IgE/IgG4 test years ago. Had to pay fifty bucks out of pocket, because it is "just a food allergy" Turns out I'm severely allergic to bananas. Fucking bananas, didn't even know this was possible. (On top of beeing allergic to the whole wheat family).
Wish you all the best.
Holy crap, the entire wheat family! I'm so sorry. But I'm glad you got answers. Aw man, I hope that isn't what this is I'm dealing with. But I will still be grateful to have answers whatever they turn out to be.
I feel you, doc wants me in for a colonoscopy and upper GI scan. :( Apparently I'm losing blood somewhere and spit-roasting is how they find it? 🤔
Oh dammit made me snort. Thanks for that!
Hope I don't snort, I might die!
Haha, dammit, can your docs keep a straight face when you're conscious?
I apparently scare my doctors on a regular basis so I try to keep it light.
I was at my cardiologist and they couldn't get my blood pressure.
"Well, I assure you, I do have blood pressure because I'm sitting here talking to you, right?"
"Yeah, it's 58/47, WE DON'T KNOW HOW YOU'RE DOING THAT!"
Another time I was hospitalized... wake up at 6 AM, fiddling around on my phone, nurse comes in.
"Were you asleep about an hour ago?"
"Yeah, why?"
"Your heart stopped for 8 seconds."
"Um, 'thank you'? I don't know the correct response to that."
I went 35 years with abdominal pain. Then in my 40's I found out I had this rare Cancer in a rarer place. I had surgery and all the pain went away. I got new pain in place of the old but who knew. Bodies are weird.
I've heard there's been an uptick in cancers in people under the age of fifty. The doctors still try to push the idea that you're too young to get this or that cancer if you're not a certain age, but they need to update that information. Things have changed. A much wider scope of people are prone to illness nowadays than we once were-or than was reported. I'm really sorry you were dealt this awful card, but I'm glad you finally got answers after all that time.
So much sugar.
Same here op. I've been sick my whole life from stress making me sick and gerd. Lexapro saved me from the stress aspect of it but I'm going now got an upper gi and considering the surgery because it's getting worse the older I get and I'm tired of cough gagging all the damn fucking time...
Omg, cough gagging is the worst. I feel that. :( Yes, lexapro is amazing! I was on it for over a decade. It was great. It lost effectiveness for me a few years ago and I had to taper off, now am in this limbo of trying different medication again. I think when there's less mental stress it absolutely does decrease physical health issues. I wouldn't be surprised if at least some of the crappy stuff I'm dealing with is stress-related. I hope you can find relief for your GI pain soon. If surgery seems like the right path to take, then I support that and I wish you all the best! No one should have to live with that their whole lives.