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I suppose it's comforting to know that others are in the same boat. Still scary to think about this being yet another chronic condition I'll have to learn to live with and work around, that I might not be able to, or even that it may be a progressive or even cumulative issue if I get it again.
If you’d like, I can pm you a discord support group invite (conditional on you being older than 16 and younger than 40 [we are limiting to that age range] and not being a bigot).
Just note that while there are some people in the same situation as you in that group, there are others who have been completely disabled ie. bedridden for years due to COVID. Long COVID is very much a heterogeneous condition.
(This invite is valid for anyone else with Long COVID on lemmy).
Why does it cap at age 40?
There are lots of other support groups out there.
This one keeps people in a similar age range because we have a grief of becoming disabled that looks quite different to someone who has already lived most of their life healthy. Most of us got long COVID in our early 20s/30s and therefore have a lot of similarities of losing the ability to have children, our jobs, not having much savings to help us etc.
I'm over the age unfortunately, but I really appreciate the offer!
Ah sorry about that.
If useful for you bluesky has become quite a nice congregation sort of place for people with long COVID. I can privately send you a starter pack if you’d like.
Also, The Sick Times has been doing some excellent journalism and resource sharing vis à vis long COVID.
I’m just sharing incase useful, I’ve felt so much safer now that I have a community of people with the same disability as me to discuss with :).
r/covidlonghaulers on reddit is alright, but full of people claiming random unproven treatments cured them, sometimes it reads like an essential oils facebook page, (and that’s not even counting r/longcovid, which is owned by a company selling vitamins lol).