this post was submitted on 14 Sep 2025
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Does really hot weather seem to cause it?
Do you seem to eat less salt than other people?
Do you have persistently low blood pressure but a heart rate that is easy to spike?
If you stretch just right will it happen?
I don't want to just say "go see a doctor" but having collapsed at very bad opportunities, it is not worth finding out until it's too late that you have to make some lifestyle changes to function.
Aye, spot on on all counts, it's dysautonomia.
Doctor wasn't much help tbh, compression socks, lots of salt and try to sit down before you fall down, were basically all the advice I got. The nhs is a bit shit tho.
Well, bro, I got some bad news on that front.
I've been to two of the best hospitals in the world (not on purpose, just coincidentally and they wanted to check it out in their specialty clinics) and went through some unpleasant testing (one is called a thermoregulation sweat test that they cover you in color changing sand), and that's the exact same thing I have to do.
I take 4 salt pills, drink 3 liters of water, Gatorade or Pedialyte and a beta blocker. I do cardio. The one thing I am starting to get better at now is lower body strength - my legs are pretty dinky and along with increased blood volume, bigger leg muscles can help ease the symptoms.
The beta blocker thing I got unlucky with though, there's a few of them that are better for pots but I can't metabolize them (or maybe I rapidly metabolize them so they don't work at all, I cant remember).
Electrolyte drink mixes are my saving grace, and LMNT is my favorite brand by a long shot. I enjoy drinking LMNT while every other brand I’ve tried is a slog.
I try to have 2 a day in about 25oz of water each. Hot days with lots of activity, I may need 3.
I genuinely can’t imagine getting 5–10 liters of water a day, and I already drink so much more than most people I know!
It does help me keep volume, definitely. I found ones called "vitassium". They have 500mg of sodium, 100mg of potassium per pill. That seems to work ok with 3L, so it should help reduce your intake.
It's kind of weird to think about though. All my life I had to listen to my family having too high blood pressure so I got used to not eating salt.
Well that backfired.
I’m sure you know this so I’m commenting for others.
Sodium chloride alone can really upset your stomach, and potassium “buffers” the salt in a way that reduces nausea risk. There are straight up condensed salt pills that work, but are more likely to make you sick.
I also didn’t eat a lot of salt in the past and had to train myself into it. In fact, when I first started seeing my cardiologist, I made a humorous list of all the conventional wisdom I learned wasn’t true for me.
Still makes me chuckle as I learn to listen to my body and not society.
Actually that's a really good post. I didn't know that salt without potassium would make you sick, as the products I used always had an amount of potassium in them.
And listening to our bodies shouldn't be that hard, but here we are lol
The sweat test was awful. You basically wear your underwear, lie down in what amounts to a glass oven, then they spread sand all over your and you sit still for an hour and bake. Then they take a picture at the end.
And purple means sweat, yellow means no sweat. It shows what sweat glands activated by the autonomic nervous system. Then you have to shower it off and it takes forever.
They were very professional about it though, it was a nurse, a doc, and technician. I guess they were doing multiple tests at the same time, but I never saw other people doing it. Which was a relief I didn't really want to see other purple people
Ugh, I would have been a miserable puddle of sensory overload. Kinda glad the nhs doesn't have the budget for that kind of thing now.
As far as I know I'm the only one without high blood pressure in my family too, it's weird how stress can break us so differently despite the shared genes.
Thank you for the Vitassium link!
I was in a miserable puddle of sensory overload. 15 years after the test I started learning that yeah I'm probably ASD, and there's a strange correlation with ASD and POTS. Neuron magic.
And no problem with that yeah.