this post was submitted on 17 Mar 2025
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 9 months ago
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[–] [email protected] 21 points 1 month ago (2 children)

It took nearly 12 months, an emergency visit, and being lucky enough to get a Dr who listened before "the tests look normal, idk, do some stretches?" became "oh no, your arm's blood supply is compromised, we have to do surgery."

So glad I didn't listen to the other Drs, or I'd never have found I have the lucky combination of arterial and venous thoracic outlet syndrome. On the downside, they're going to cut my rib out, but it definitely taught me to trust my body when something seems wrong.

[–] [email protected] 8 points 1 month ago (1 children)

I am so glad you found the diagnosis of your problem! Amazing!

[–] [email protected] 4 points 1 month ago