this post was submitted on 03 Aug 2026
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No Tricafta or any of the newer ones work for you?
The last stage trials came out when I was in the ICU waiting for my lungs, it wasn’t an option I was too sick. That said I’m glad I got new lungs since I’m significantly healthier now than the people I know going the gene editing route, obviously survivorship bias is at play since I got great lungs but I’m very healthy these days, even if I did end up living in the ICU for 6 months, 3 pre transplant and 3 post, we joke I paid for them upfront since I hadn’t had any serious issues after I was discharged, other than the mental toll of course.