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So sorry to hear you are going through it. In the age of "AI" I have started feeding every detail, syptom and rest result into that and it has helped narrow my search and calm some of my worries.
I'm 39 soon and I have suddenly lost all energy in my muscles. Stiff neck and speech problems. Every small effort results in sore muscles like you wouldn't believe. Im massively tired all the time, 9h sleep at night are not enough. I need about two naps per day just to keep working.
So far the doctors are not even taking me seriously. They think its all just in my head.
I think its something akin to chronic fatigue syndrome and something in my neck. Chatgpt was able to give me some exercises that help relieve some of the symptoms for now.
Darn, that's rough. I agree AI has been massively helpful in the never-ending search for answers. It has been able to quickly find case studies of people with situations like mine. It's good at finding patterns between things that people wouldn't think of. Also very good at explaining test results and tests to try. But it's important to check everything it says thoroughly, of course.
I know exactly what you mean about minor effort = sore muscles. I'm at the point where exerting too much force can cause pain that lasts for days, even weeks. I get fatigue but not as bad as yours. Extreme daytime drowsiness is a neurological symptom of many diseases, for example MS and myotonic dystrophy.
Doctors didn't take me seriously either for the first 7 years until I nearly lost the ability to walk. And I'm glad I did, because doctors truly only believe what they can see. I'm sure you know that speech problems can indicate all sorts of serious problems. I'm surprised your doctors aren't more concerned about that.